Who’s talking about CF? A comparison of CF internet posts during 2015 and 2019

Title: Who’s talking about CF? A comparison of CF internet posts during 2015 and 2019
Author(s): T. Vagg N.J. Ronan D. Morrissy M. McCarthy C. Fleming Y. McCarthy S. Tabirca B.J. Plant
Institution: Cork Adult CF Centre, Cork University Hospital, University College Cork, Wilton, Cork, Ireland School of Computer Science and Information Technology, University College Cork, Cork, Ireland HRB Clinical Research Facility Cork, University College Cork
Poster: Click to view poster
Category: CF and Pulmonary Infections
Abstract: This research investigates who is talking about CF online, and how this discussion has changed over time. Google Alerts was enlisted to generate and record alerts for the term “Cystic Fibrosis” and related terms for six months in 2015 and 2019. One month data was also recorded for Asthma, COPD and Lung Fibrosis for comparison.
In 2015 there were 3518 CF related terms, this increased to 5214 in 2019. There was an increase in blocked articles (144 to 540) due to GDPR regulations. For both years, the USA generated the highest number of alerts (56%). In 2015, News (58%) was the most common category, however this changed to Financial/Marketing (35%) in 2019. In 2015 Asthma received the highest mean number of alerts per day (31.7), followed by CF (16.1), then COPD (14.6), and Lung Fibrosis (5.1). However, in 2019 CF was the highest with 19.5, followed by Asthma (11.5), COPD (10.3), and Lung Fibrosis (7.4).
CF related internet postings are changing. CF is now more commonly reported on than other lung conditions with an emphasis on investment opportunities, while content from the general public has decreased (or is private).